Medical-record checklist: what to collect and how to get it in Skåne¶
What 1177 Journalen shows in Skåne¶
J can see some records himself online (1177 Skåne, Läs din journal) [E].
Visible online:
- Journal notes, as soon as they are signed. A 14-day filter can hide the newest notes.
- Radiology referrals and reports since June 2020.
- Clinical-chemistry results.
- Vaccinations given by Region Skåne's public services.
Not visible online: diagnoses, care contacts, medications and the care plan. Pathology (PAD) and flow cytometry are not listed as visible, so they must be ordered.
How to order copies¶
[E] There are three routes, plus a reply deadline for GDPR requests:
- E-service or phone. Use the 1177 e-service Beställ utskrift från journal, or call Journalservice on 0771-86 66 00 (weekdays 9–12). Printouts go mainly as a PDF to the 1177 inbox.
- GDPR access request. Region Skåne's GDPR Art. 15 form (version 2026-06-01) gives a free printout of journal notes in about a week, sent by registered post. The same form can request X-ray images, referrals and lab or biobank registers. Send it to Region Skåne, Regionarkivet, Journalservice, Box 24046, 224 21 Lund (form).
- Freedom-of-press request. The Tryckfrihetsförordningen (TF) route gives copies of named documents. A request "ska behandlas skyndsamt" (must be handled promptly); a fee may apply (TF 2 kap. 16 §).
- GDPR response time. Under GDPR the controller must answer within one month, extendable by two (IMY).
Unverified:
- Region Skåne's current fees for paper copies and images. Two Region Skåne leaflets reportedly give conflicting fees, and neither fee schedule is verified.
- [I] Whether the clinic or contact nurse will print the PAD and flow reports directly. This is often the fastest route.
Checklist¶
| Item | Why it matters | How to get it in Skåne |
|---|---|---|
| ☐ PAD for both nodes, including immunohistochemistry addenda and PAD/block numbers | Diagnosis, accelerated features, exclusion of other lymphomas, second review | Not shown online: ask the clinic, or order via Journalservice or the GDPR form |
| ☐ Whether slides and blocks are available, and where they are stored | A second pathologist needs them | Ask the treating doctor or the pathology department. Transfer goes institution to institution (Biobankslagen) |
| ☐ Flow-cytometry reports (node and blood) | CLL vs SLL; phenotype | Ask the clinic; order |
| ☐ Full blood-test history (Hb, white cells, differential, platelets, reticulocytes, LD, creatinine, protein fractions, DAT, immunoglobulins) | Stage, trends, lymphocyte doubling time | Clinical chemistry visible online (some back to 2014); order other labs |
| ☐ Imaging reports and images | Node and spleen size; TLS risk later | Reports visible online; request the images (GDPR form) or ask for digital transfer in the referral |
| ☐ Medication and supplement list | Drug interactions | Not shown online: request it, and keep your own list |
| ☐ Diagnosis list and comorbidities | Treatment choice | Not shown online: request it |
| ☐ Operation note for the excision (and day-surgery record) | Which nodes, their size, findings | Order |
| ☐ Physician and nurse notes (surgery, oncology/haematology) | Reasoning, plan, SVF status | Visible online once signed; order the full set |
| ☐ Referrals and replies, including the SVF referral | Pathway, timing | GDPR form: "Remisser, remissvar" |
| ☐ FISH, TP53, IGHV and bone marrow reports (if done) | Treatment selection | Ask the clinic; order |
| ☐ Vaccination history | Plan vaccines | Public Skåne vaccinations visible online; bring other records |
| ☐ Min vårdplan | Shared plan | 1177 Stöd och behandling, via the contact nurse |
| ☐ Your own one-page timeline (symptoms, dates, tests, decisions) | Speeds up any second opinion | Write it yourself |
Sources: 1177 Läs din journal; Region Skåne GDPR form; Patientdatalag; 1177 Min vårdplan.
Other record rights. J can also ask for a log extract showing who has read his record. If a correction is refused, he can require a note in the record (IMY, rights in health care).