Medical-records checklist¶
What to collect, and how to get it in Skåne.
What 1177 Journalen shows in Skåne¶
You can read some of your records yourself online (1177 Skåne, Läs din journal) [E].
Visible online:
- Clinical notes, as soon as they are signed. A 14-day filter can hide the newest notes.
- Radiology referrals and reports since June 2020.
- Clinical-chemistry results.
- Vaccinations given by Region Skåne's public services.
Not visible online: diagnoses, care contacts, medications and the care plan. Pathology (PAD) and flow-cytometry reports are not listed as visible, so they must be ordered.
How to order copies¶
[E] There are three routes, and GDPR sets a deadline for the reply:
- E-service or phone. Use the 1177 e-service Beställ utskrift från journal, or call Journalservice on 0771-86 66 00 (weekdays 9–12). Printouts are mainly sent as a PDF to your 1177 inbox.
- GDPR access request. Region Skåne's GDPR Art. 15 form (version 2026-06-01) gives a free printout of your clinical notes in about a week, sent by registered post. The same form can be used to request X-ray images, referrals and extracts from laboratory or biobank registers. Send it to Region Skåne, Regionarkivet, Journalservice, Box 24046, 224 21 Lund (form).
- Request for official documents. Under the Freedom of the Press Act (Tryckfrihetsförordningen, TF) you can get copies of named documents. A request "ska behandlas skyndsamt" (must be handled promptly); a fee may apply (TF 2 kap. 16 §).
- GDPR response time. Under GDPR the controller must reply within one month, a deadline that can be extended by two further months (IMY).
Not verified:
- Region Skåne's current fees for paper copies and images. Two Region Skåne leaflets reportedly give conflicting fees, and neither fee schedule has been verified.
- [I] Whether the clinic or contact nurse will print the PAD and flow-cytometry reports directly. This is often the fastest route.
Checklist¶
| Item | Why it matters | How to get it in Skåne |
|---|---|---|
| ☐ PAD for each excised node, including immunohistochemistry addenda and PAD/block numbers | Diagnosis, accelerated features, exclusion of other lymphomas, second review | Not shown online: ask the clinic, or order via Journalservice or the GDPR form |
| ☐ Whether slides and blocks are available, and where they are stored | A second pathologist needs them | Ask the treating doctor or the pathology department. Transfer is from institution to institution (Biobankslagen) |
| ☐ Flow-cytometry reports (node and blood) | CLL or SLL; phenotype | Ask the clinic, or order them |
| ☐ Full blood-test history (Hb, white cells, differential, platelets, reticulocytes, LD, creatinine, protein fractions, DAT, immunoglobulins) | Stage, trends, lymphocyte doubling time | Clinical chemistry visible online (some back to 2014); order other results |
| ☐ Imaging reports and images | Node and spleen size; TLS risk later | Reports visible online; request the images (GDPR form) or ask for digital transfer in the referral |
| ☐ Medication and supplement list | Drug interactions | Not shown online: request it, and keep your own list |
| ☐ Diagnosis list and comorbidities | Treatment choice | Not shown online: request it |
| ☐ Operation note for the excision (and any day-surgery record) | Which nodes, their size, findings | Order it |
| ☐ Doctors' and nurses' notes (surgery, oncology/haematology) | Reasoning, plan, SVF status | Visible online once signed; order the full set |
| ☐ Referrals and replies, including the SVF referral | Pathway, timing | GDPR form: "Remisser, remissvar" |
| ☐ FISH, TP53, IGHV and bone-marrow reports (if done) | Treatment selection | Ask the clinic, or order them |
| ☐ Vaccination history | Planning vaccinations | Vaccinations given by Region Skåne's public services are visible online; bring records of any others |
| ☐ Min vårdplan | Shared plan | 1177 Stöd och behandling, via the contact nurse |
| ☐ Your own one-page timeline (symptoms, dates, tests, decisions) | Speeds up any second opinion | Write it yourself |
Sources: 1177 Läs din journal; Region Skåne GDPR form; Patientdatalag; 1177 Min vårdplan.
Other record rights. You can also ask for a log extract showing who has read your record. If a correction is refused, you can require that a note about it be added to your record (IMY, rights in health care).